Resources
A guide for patients receiving genomic sequencing for genetic conditions
This patient guide was developed by Melbourne Genomics Health Alliance for patients who have consented to receive genomic sequencing through Melbourne Genomics projects. The link is provided here as most of it is applicable to all KidGen project participants. The guide reiterates a lot of what is covered in patient consent documentation, and discussion with genetic counsellors involved.
Please click on the links below to access resources from supporting foundations……
KidGen created resources:
Alport Women
Top 5 things to know - Alport Women
ADPKD
ADPKD Decision Aid (16 years +)